-
-
-
-
-
-
-
Popular Posts
Button up your overcoat…why don’t you use one of mine?
Tag Archives: Lupus
Mama Sick’s Handy Guide For the Healthy Person
(This will be my final contribution to Invisible Illness Awareness Week. If I have helped one new chronically ill person find strength, one chronically ill mom say “Me too!”, if I have educated just one person when it comes to … Continue reading
Posted in Uncategorized
Tagged But You Don't Look Sick, chronic, chronic illness, Chronically Ill, chronically ill moms, chronically ill mothers, Disability, disabled, disease, diseases, Disney World, how can you comfort a chronically ill person, How to treat people with chronic illness, Invisible Illness, Invisible Illness Awareness Week, Lupus, what do you say to a chronically person, You Look Fine
19 Comments
You Are NOT The Only One
(As Invisible Illness Awareness Week continues, I am dedicating my posts to those with Chronic Invisible Illnesses, and to helping those who may know of someone with an Invisible Illness better understand them. It is an honor for me to … Continue reading
Posted in Uncategorized
Tagged blogger, blogging, But You Don't Look Sick, chronic, Chronic Babe, chronic illness, Chronically Ill, Dunkin' Donuts, Face Book, Google+, internet support groups, Invisible Illness, Invisible Illness Awareness Week, Lupus, M.S., Multiple Sclerosis, Rheumatoid Arthritis, Social Media, support groups, Tweeter, Twitter, Tyler
5 Comments
The Summer of Chronic
About ten minutes ago (around 7 a.m.) I got my first sense of “back to school” dread. Even though I was a good student, I was a girl who loved her summers. I was a tom boy; a tree climber, … Continue reading
Posted in Uncategorized
Tagged abilities, anxiety, autumn, back to school, back to school blues, back to school time, chronic, chronic disease, chronic illness, Connecticut, daycare, Depression, diagnosis, Disability, disease, Get Smart, Gidget, Grant, Harriet the Spy, Judy Blume, karate, kindergarten, Labor Day, library, Lupus, New Jersey, New York, OCD, Paul Zindel, pre-school, preschool, sensory issues, Sensory Perception Disorder, Social Security Administration, summer, summer camp, The Cars 2, The Smurfs, Tyler, Winnie the Pooh, winter
3 Comments
The ShutMyMouth Diet
That’s right. I am officially on a diet. If I write it here for God and all to see then I have to stick with it! When women have chronic illnesses, it often is very much out of our control … Continue reading
Posted in Uncategorized
Tagged baby, Ben & Jerry's, But You Don't Look Sick, cancer, Christine Miserandino, chronic illnesses, Depression, diet, dieting, endocrine system, endocrinologist, exercise, firing your doctor, Gestational Diabetes, heroin chic, insomnia, Lupus, med, medications, metabolism, Oreo, Oreo cookies, Osteoporosis, pain, post-partum, pre-pregnancy, pre-pregnancy weight, pregnancy, pregnant, psychiatrist, Rubenesque, The Spoon Lady, therapist, Tyler, weight, weight gain, weight loss
7 Comments
BlogHer Conference 2012: Looking Ahead and Wondering
For those uninitiated, the BlogHer conference 2011 is coming to a close. To read my devastation over not being able to go BlogHer’s past click here and here. This year I was only able to once again, watch from the … Continue reading
Posted in Uncategorized
Tagged Alice in Wonderland, appendicitis, BlogHer'11, BlogHer'12, BlogHer. BlogHer Conference, candles, chronic conditions, chronic illness, Death, Disability, disability money, Disney Store, Disney World, dying, emergency room, Emily, Face Book, Father, God, Google+, Grant, hospital, Imagination candle, Jesus, life, Lupus, mommy, pray, prayers, praying, The Mickey Mouse Clubhouse, Twitter, Tyler, Ulcerative Colitis, ultrasound, Vinylmation
9 Comments
Wake Me Up Before I Go-Go
You know that title isn’t even funny? Even though it is? If you read me regularly, follow my tweets, or are on my Google+ (as Emily Cullen), you pretty much know what’s going on in my life at all times. … Continue reading
Posted in Uncategorized
Tagged Benlysta, Emily, Emily Cullen, Google+, Grant, immunosupressant, Lupies, Lupus, Narcolepsy, Narcoleptic, Orencia, Reese's Peanut Butter Cups, Tyler
3 Comments
Story and Contest! Win a Beautiful Anklet for the Summer!
First, the amazing story. In February I did a contest with Michelle of Hope in Bracelets. The winner of the contest was a woman named Caren who wrote to me about whom she would be giving the bracelet to: “My … Continue reading
Posted in Uncategorized
Tagged anklet, beaded anklet, beaded bracelet, beads, bracelet, cancer, Chemotherapy, contest, Contests, Cure, Fibromyalgia, Hope, Hope in Bracelets, Jewish, Lupus, MS, Non-Hodgekin Lymphoma, Refuah, refuah shlema, Rheumatoid Arthritis
21 Comments
Each to His Own But Someone is Always Doing Something
I read The Unxpected Circumnavigation: Unusual Boat, Unusual People- Part 1 by Christi Grab as part of a member of the From Left to Write book club. I was given a free copy as part of the book club. This post … Continue reading
Posted in Uncategorized
Tagged Africa, Bastille Day, beads, Book club, Bourbon Street, Cartoon Network, Christi Grab, Disney World, Europe, family, From Left to Write Book Club, Grant, Hawaii, jazz, Los Angeles, Lupus, Miami, mojito, my past, New Orleans, Puerto Rico, Rome, The Golden Gate Bridge, The Looney Tunes Show, The Unexpected Navigation, Tyler, working mother
8 Comments
Resentment: What Ive Feared the Most is Already Happening
(Laptop update, yep, I am still using hubby’s. I finally dragged myself back to the store where I had to leave my laptop again with them. I hope they will take good care of her. They told me she would … Continue reading
Posted in Uncategorized
Tagged appointment, arguments, blog, child, Daddy, first time, Graduation, Grant, love, low grade fever, Lupus, mama, mommy, Monday, Mother, occasion, paranoia, Parent, parents, professional writer, Tyler
6 Comments
If I Had Never Had My Child…
(I am writing this post on my husbands laptop, as mine has crashed. His laptop has a possessive/quote key that works about 25% of the time. As he is a professional writer I do not know how he can stand … Continue reading
Posted in Uncategorized
Tagged child, children, Chronic Fatigue, chronic illness, chronically ill parents, colic, conception, Costochondritis, Fibromyalgia, Lupus, Mama Kat's Writer's Workshop, parents, postpartum, postpartum depression, pregnant, Rheumatoid Arthritis, School House Rock, Three is a Magic Number, trying to conceive
11 Comments
