I went to the Rheumatologist today for my Orencia infusion.  I have had really achy joints for three months now and for about a month my joints have been swelling as well.  At the end of the day I can barely walk.  I have been living with ice packs for best friends on my hands and wrists, elbows, knees, and ankles and feet, and have had to increase my pain medication.  I’ve even been more tired and fatigued lately.  If you think you may have read this before, you may be right, my brain fog is increasing too.

Is it this crazy summer we’ve been having or is my disease getting out of control?.  I don’t think anyone’s having a normal summer this year. By us it’s either been a total heatwave, rain, humidity, or all of the above.  I guess depending on when this weather pattern settles down is when I will have a better idea of what is really going on with my body.

Despite my discomfort, summer is still my favorite season.  Easy light clothes for Tyler and I, flip-flops and pretty toe nails, and not having to blow dry my hair all make the livin’ easy.  I just wash my hair, put some products in it and let it go curly.  My hands and arms are not going to be happy when blow drying my hair is a must when the weather is cooler.

The next add-ons to my Orencia treatment are steroids and/or Methotrexate which are full of side effects and I don’t want to make myself any sicker in order to get better, you know?  So, until I can’t stand it any more, it will just be me, Orencia and Percocet on ice!