For the past two years I’ve had my co-pay for my hypersomnia medication paid by a non-profit agency. Even the generic of the medication is expensive, with my co-pay being over $300 a month.
In October I got a letter from the agency saying that I would have to apply for a grant for 2017. This
was new because I have automatically had my grant renewed every year. The start date to apply was December 5th, so I put it on my calendar.
On the afternoon of the 5th I said “Shit!” because I hadn’t applied for the grant yet. I went to the site and found that the money for Narcolepsy had already been allocated. There would be no help for me. I called the agency and they said I should keep checking the site because more funding could come through. I check it everyday.
There is absolutely no way I can afford the medication by myself. I have been rationing my pills, saving them for days I need to stay up through the day. But after they run out I will go back to sleeping a good part of the day.
I hate when Tyler is home and I have to take a nap. That he has to be on video games as I sleep the day away.
Meanwhile, somehow I managed to sprain my lower back. I finally went to the doctor last week and she prescribed muscle relaxers, heat, massage, etc. I am reading this book that says back pain is the result of tension, a problem you can’t face, so your brain manufactures the pain. It comes highly recommended by Howard Stern of whom I am a big fan. If I get anything out of it I’ll be sure to let you know!
My Christmas shopping for Tyler is done except for his stocking but I haven’t gotten a tree yet or sent Christmas cards out. Pressure!
How are your holidays going?
